Any endometriosis sufferers here?

cloven hooves The Personal Is Political Women's Health Discussion Any endometriosis sufferers here?

Discussion Any endometriosis sufferers here?

Discussion Any endometriosis sufferers here?

komorebi
“I am not free while any woman is unfree, even when her shackles are very different from my own.” – Audre Lorde

221

Feb 26 2025, 2:33 PM

#1

I've got the surgery to both diagnose and treat endo coming up early next month. It's pretty crazy that you can't get endo diagnosed without literally having a camera stuck in your guts, but it is what it is. :harold:

:harold:

Anyway, was just wondering if anyone else has endo or suspected endo. I'm pretty nervous about the procedure so I'd love to hear from others if you've had it done.

komorebi

“I am not free while any woman is unfree, even when her shackles are very different from my own.” – Audre Lorde

Feb 26 2025, 2:33 PM #1

I've got the surgery to both diagnose and treat endo coming up early next month. It's pretty crazy that you can't get endo diagnosed without literally having a camera stuck in your guts, but it is what it is. :harold: Anyway, was just wondering if anyone else has endo or suspected endo. I'm pretty nervous about the procedure so I'd love to hear from others if you've had it done.

Shroom

28

Feb 26 2025, 11:03 PM

#2

I don't have endo myself (so far... with how specifically awful my periods were before BC I honestly wouldn't be surprised if I do have endo but the tissue was too small to see haha) but as someone who went through the shove-a-camera-up-your-vagina rigamaroll* a few times and finally found a solution that helped I can't support you enough that you're seeking treatment. It's an absolute life-changer and my only regret was not doing something about it sooner! :)

*Like, I get it, if it's not bone it won't show up on an x-ray, but it's crazy how we have such advanced tech in so many areas but we still have to resort to shoving cameras into people a lot of the time for diagnosis lol. Hope someone somewhere is working on a different method!

Though that's all easy for me to say when my treatment is "just swallow a pill :)" and yours is literal surgery lol, I can't imagine how you must be feeling. If it helps, my boyfriend had surgery for a chronic pain issue done not too long ago, and despite his anxiety leading up to the surgery plus the long recovery and residual pain for months afterward, he's extremely happy he decided to go through with it!

I'm sorry I don't have more to say than that (and I hope me replying here, not having endo and not even having had surgery before, isn't an asshole move OTL) but I'm cheering you on and hoping the surgeries go smoothly for you!! :meowheart:

:meowheart:

And if you ever want advice to help cope with and/or need to rant about your painful periods with someone who (somewhat) gets you, I'm here for you!

Edited Feb 26 2025, 11:10 PM by Shroom.

Shroom

Feb 26 2025, 11:03 PM #2

I don't have endo myself (so far... with how specifically awful my periods were before BC I honestly wouldn't be surprised if I do have endo but the tissue was too small to see haha) but as someone who went through the shove-a-camera-up-your-vagina rigamaroll* a few times and finally found a solution that helped I can't support you enough that you're seeking treatment. It's an absolute life-changer and my only regret was not doing something about it sooner! :)

*Like, I get it, if it's not bone it won't show up on an x-ray, but it's crazy how we have such advanced tech in so many areas but we still have to resort to shoving cameras into people a lot of the time for diagnosis lol. Hope someone somewhere is working on a different method!

Though that's all easy for me to say when my treatment is "just swallow a pill :)" and yours is literal surgery lol, I can't imagine how you must be feeling. If it helps, my boyfriend had surgery for a chronic pain issue done not too long ago, and despite his anxiety leading up to the surgery plus the long recovery and residual pain for months afterward, he's extremely happy he decided to go through with it!

I'm sorry I don't have more to say than that (and I hope me replying here, not having endo and not even having had surgery before, isn't an asshole move OTL) but I'm cheering you on and hoping the surgeries go smoothly for you!! :meowheart: And if you ever want advice to help cope with and/or need to rant about your painful periods with someone who (somewhat) gets you, I'm here for you!

komorebi
“I am not free while any woman is unfree, even when her shackles are very different from my own.” – Audre Lorde

221

Yesterday, 2:02 PM

#3

Thanks for the kind words, Shroom! :) I've never had any kind of surgery that entailed being cut open before, so I'm low-key freaking out 🥲 I'm glad you found a treatment for your particular ailment. We should swap painful period stories/how we deal with them. Maybe not in this thread specifically, but a new one? 🤔 I'll get around to making one at some point!

komorebi

“I am not free while any woman is unfree, even when her shackles are very different from my own.” – Audre Lorde

Yesterday, 2:02 PM #3

Thanks for the kind words, Shroom! :) I've never had any kind of surgery that entailed being cut open before, so I'm low-key freaking out 🥲 I'm glad you found a treatment for your particular ailment. We should swap painful period stories/how we deal with them. Maybe not in this thread specifically, but a new one? 🤔 I'll get around to making one at some point!

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